You will need to "join" DART in order to view their documents and glean insight into this alternative treatment. The forum can be found at https://www.facebook.com/groups/1622748151282109/
This is the logo you are looking for:
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| https://www.facebook.com/groups/1622748151282109/ |
This forum is responsible for me being able to make contact with so many others that were seeking some type of treatment for this painful and benign disease. It was thru the courtesy of others sharing their experiences and their guidance that I was able to successfully be treated with low dose radiation therapy.
As you will read further in my journey, I have successfully halted the disease in both feet at this time. I am pain free and my nodules are completely flat. I have regained my life and almost all activities to their fullest.
http://www.dupuytrensdiseasesupport.com/what-is-ledderhose-disease.html
I wanted to share with you DART's contact information so that you can now become part of this group as you follow my journey. You will be able to ask questions with real people who have had this treatment and many of them had it years ago. This forum is open to world wide members and has forum administrators from several countries.
Brenda
I've just started RT for DC in my left hand and stumbled upon your blog. It's been validating, so thank you for that. I'm wondering if you have fibromyalgia??? I do. I was diagnosed with DC a year ago, but it wasn't painful or anything but a nodule. About 2 months ago it became active and I started on the search for a RO to treat it. Fortunately I finally located one in Columbia SC where we live. But, at the same time my DC became active my feet started burning and blah blah blah. I saw a podiatrist and, after an xray, he said no Ledderhose but I do have plantar fasciitis. Did your PF go away after RT??? Someone on the DART site suggested I wait on having RT on my feet in case it develops into Ledderhose as I would definitely want treatment then and I shouldn't get it twice. My feet are hurting more and more and my gut is telling me I should be proactive about this. I know you haven't posted since 2016 (I'm not through reading all your posts) - hope you are well and are still receiving notifications of comments.
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