Monday, March 7, 2016

2013, MY INTERNET BREAK THROUGH ABOUT DUPUYTRENS and LEDDERHOSE

My 2013 Internet break through!
While searching on the internet I finally found out this benign nodule is also called a plantar fibroma.  More research led me to Ledderhose Disease.  I then find it is associated with Dupuytren's Disease.  When I look up Dupuytren's Disease and I see advanced photos, I realize this is exactly what my Dad has in his hands!  I cannot tell you the shock and saddness I felt when I found this out.  Devastated was an understatement!

I research further for an answer, actually I am on a mission to find the treatment/cure. I am in more pain than I could every imagine for a "benign and non-painful" disease. The more I read, the more devastating I become.  Why?  Because my dad has Dupuytren's Contracture and his hands are contracted.  I am 52 years old now and I do not want contracted feet!  

More research and I find some that say in Germany they have actually delivered radiation therapy as a treatment (not a cure) for this disease on the hands and the feet.   And that this has been done in Germany for years (meaning just over 10 years).  Better info comes as I keep researching this that radiation therapy helps the pain and reduces nodules about 75% of the time.   Now....keep in mind this is in Germany and I live in the USA.

http://www.dupuytrensdiseasesupport.com/what-is-ledderhose-disease-.html 

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