The medical record nightmare 2015
So you think your medical records are yours and you just sign a form and get them, right? Well I did too! I actually went to my podiatrist office and signed the form for the records to be released to UAB. A few days later I contact Dr. Ruby Meredith's office and find out they don't have my records, hmmm. I phone the podiatrist office and they tell me their computer system was down, but they would get them sent in a couple of days. I think that's actually going to happen. I phone back and find out the computer is still down. Weeks later, the server is down now and still no records. When I filled out the form for the release they asked why I wanted them, I just said I wanted to get another evaluation. Long story short - I was NEVER able to get the records for myself nor sent to Dr. Meredith. Do I feel the server was down and they were unable to get me the records - OR - do I believe the doctor knew they were going to the R.O. dept and just conveniently found the server to be the reason for my records not to be available. I'll not post my thoughts. I will say this - until this day in 2016 I have NEVER found a doctor to be willing to even discuss RT as an option for this disease. They clam up and act like a mute.
Note: Radiation Therapy is an often used therapy for this disease in another country. Many times we are left to use other studies as our(meaning the USA) own research since we are not providing the medical treatment here and doing the studies here. Surgeons seem to tell people that R.T. will give you cancer. Thankfully with this low dose and the typical age of people who get this disease, our risk is less than 1%. I've learned a lot and one of the most important things I have learned is that surgeons are trained to be just that, a surgeon. They have no training on R.T. and I believe this is a black hole for them. It's not their expertise and they have no knowledge about it. Also, if R.T. is successful they lose business. So, I can see why they are not R.T. friendly.
http://www.dupuytrensdiseasesupport.com/what-is-ledderhose-disease.html
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