Thursday, March 10, 2016

2014 FACEBOOK FORUMS ON DUPUYTRENS and LEDDERHOSE, A LIFE SAVER FOR ME

The Facebook Dupuytren's Contracture group leads me to a new Facebook group April 2014
 
So I joined the Dupytren's Contracture Facebook group.  https://www.facebook.com/groups/DupuytrensContracture/There are tons of people from the USA on here and some of them even have Ledderhose Disease!  I am finally feeling validated for my feelings.  Many people are experiencing  the exact same symptoms I am having.  Many people on this site have the more common Dupuytren's Disease and many of them are having surgery for it.  I read more and find out that disturbing this collagen seems to put this disease into an active mode and it starts to grow.  I found out there is NO CURE. Cutting it out is not an answer, but seems more like a curse.  My pain is at an even more all-time high and honestly, I am willing to do anything for some help at this point.

While on this group, there is a small sector of people discussing this "radiation therapy" I had read about in Germany.  AND....someone in the USA has had this done!  I am sucked into this group, trying to absorb all the information I can. The comments being made about this seem to be concerning, why would anyone elect to have radiation therapy?  Isn't that for people that have cancer?  I've never known anyone to elect to have radiation therapy.
http://www.dupuytrensdiseasesupport.com/what-is-ledderhose-disease.html 

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