DUPUYTRENS AND LEDDERHOSE ON FACEBOOKS DART FORUM

DART, Dupuytren's Advocates for Radiation Therapy is a Facebook support group for Dupuytren's and Ledderhose sufferers. 

You will need to "join" DART in order to view their documents and glean insight into this alternative treatment. The forum can be found at https://www.facebook.com/groups/1622748151282109/

This is the logo you are looking for:  

https://www.facebook.com/groups/1622748151282109/

This forum is responsible for me being able to make contact with so many others that were seeking some type of treatment for this painful and benign disease.  It was thru the courtesy of others sharing their experiences and their guidance that I was able to successfully be treated with low dose radiation therapy.  

As you will read further in my journey, I have successfully halted the disease in both feet at this time. I am pain free and my nodules are completely flat.  I have regained my life and almost all activities to their fullest.
http://www.dupuytrensdiseasesupport.com/what-is-ledderhose-disease.html 

I wanted to share with you DART's contact information so that you can now become part of this group as you follow my journey.  You will be able to ask questions with real people who have had this treatment and many of them had it years ago.  This forum is open to world wide members and has forum administrators from several countries.

Brenda

Dupuytren's Disease, Dupuytren's Contracture and Ledderhose Disease

Very interesting article this week on Fibromyalgia and finding out where the pain source comes from.  It just brings up another reason why Dupuyren's may be so painful also.  Take a look at it when you have time. "Scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand."  http://healingbright.com/fibromyalgia-mystery-finally-solved/

Join our DART Group on Facebook to learn more about Dupuytren's Disease, Dupuytren's Contracture and Ledderhose Disease.  https://www.facebook.com/groups/1622748151282109/

Take a look at our website when you can also:  DupuytrensDiseaseSupport.com

Dupuytren's Disease, Dupuytren's Contracture and Ledderhose Disease, A RARE DISEASE recognized by NORD

NORD, National Organization for Rare Disease recognizes Dupuytren's and it's affiliated disease as a rare disease. http://rarediseases.org/rare-diseases/dupuytrens-contracture/ While Dupuyren's disease or Ledderhose disease does not always cause contracture, Dupuytren's Contracture is a term used for the hands when they do contract.  NORD has chosen February 28, 2017 as Rare Disease Day( http://rarediseases.org/for-patients-and-families/connect-others/rare-disease-day/ )and on this day we can each share our story on their website and on our personal sites to make others aware of this disease.  Please share your story, our disease is not as rare as you think!  We have millions of people in the USA with this disease and we still do not have anyone in an active stage of testing for a cure.  The Dupuytren Foundation is trying to find 10,000 people to sign up for the Dups Study, but in 6 months they have only found 700.  So, sharing your story will help us get to those millions.  If you have not registered, please do: The Dup's Study link is:  http://dupuytrens.org/enroll-in-the-iddb/

Follow me:  

Email:          DupuytrensDisease@mail.com 

Facebook:    Click here to join DART Facebook forum 

Website:      www.DupuytrensDiseaseSupport.com 

My Blog:     http://dupuytrensdiseasesupport.blogspot.com/ 

Twitter:       https://twitter.com/DupuytrensForum 

Twitter:       https://twitter.com/isellure

Dupuytren's Disease In The News

RUSSIA CONFERENCE May 2016
First international conference in Russia, dedicated to the problems of Dupuytren's contracture treatment and treatment of other diseases of the hand, such as stenosing ligamentitis (Trigger finger, De Quervain tendinitis), tunnel syndromes etc.

It is a shame these Surgeons do not even mention Radiation Therapy as a treatment option.  With no cure, it would be BEST to have non-invasive treatment if possible before any surgery since trauma tends to put Dupuytren's or Ledderhose into an active state.  ARGGGGG!
#dupuytrens #ledderhose #radiationtherapy #nosurgeryfordupuytrens #DARTonfacebook

Follow our website at:  www.dupuytrensdiseaseforum.com
Join DART on Facebook to learn more about treatment options  https://www.facebook.com/groups/1622748151282109/
Sign up for the Dupuytren's Study:   http://dupuytrens.org/enroll-in-the-iddb/
Follow us on Twitter:   https://twitter.com/DupuytrensForum
Follow me on Twitter:  https://twitter.com/isellure

Dupuytren's Disease in the NEWS, Do you ever see it?

I am attaching a link to the Dupuytren's Symposium that was last year. http://www.dupuytrensymposium.com/ 

Many people do not know there is work going on but there is just not one place to find it all.

FACEBOOK:   I hope you also join us at DART on Facebook.  Our link is:  https://www.facebook.com/groups/1622748151282109/

WEBSITE:  To find out more about Dupuytren's Disease or Ledderhose Disease follow my website at www.dupuytrensdiseasesupport.com 

ON TWITTER:  #dupuytrens #ledderhose  @isellure and @DupuytrensForum

DUPUYTREN'S FOUNDATION SEEKING GRANT WRITER

March 31, 2016 
The Dupuytren's Foundation is seeking a qualified Grant Writer.  This person will need to submit a full resume and references. 

Please contact
Dr. Charles Eaton 
EMAIL:  info@dupuytrens.org
PHONE:  949-287-3387

#dupuytrens #ledderhose  
http://www.dupuytrensdiseasesupport.com/
https://www.facebook.com/groups/1622748151282109/

12 weeks after my 1st Radiation Therapy Treatment for my Ledderhose Disease (Dupuytren's Disease)

On the Monday starting the 12th week after my 1st radiation therapy, I am back in Tampa for my second session of RT with Lawrence Hochman, RO. http://floridacancer.com/physicians/lawrence-hochman-do-facro/   I am feeling none of the anxiousness I felt prior.  I know what to expect.  OR, I should say, I know to expect nothing.  That's a good thing!

I returned with some reservations about getting this second round of RT.  I felt I had enough pain relief that I really considered not having this second session.  It was explained to me that I needed it.  It was explained that round 1 was like taking 1/2 your dose of antibiotics and round 2 was finishing up the antibiotics.  The only reason I had such reservations is because I only get these two sessions of RT for life.  I was wondering if I should "save" this second session for the future if I needed it. Needless to say, I returned and I am so thankful months later that I did!http://www.dupuytrensdiseasesupport.com/


I completed my week of radiation therapy with nothing to report.  It takes appx 45 seconds per foot to administer the RT.  Dr. Hochman's team is an "on-time" group.  My appointment was at 9:30 am and at that time I was already in the room having my treatment and by 9:40 I am out the door.

The team took a look at my fibromas and felt them.  The large one is still there and can be seen and felt with a little less of a pointed stone on the top. The smaller ones are so small they are well under the skin.

I continue my RT-vacation with my water sock, keeping my foot out of the chlorine and sun.  We did take a kayak trip this time and did quiet a bit of vacation looking in Tarpon Springs, Weeki Watchi, Clearwater Beach and any other spot that looked interesting.  Who would want to miss this?
The water is crystal clear!  

I cannot stress enough to you how I connected to the Facebook forum DART - Dupuytren's Advocates for Radiation Therapy.  It was this group that got me to where I am and I want to continue to be part of the Dupuytren's and Ledderhose Community and give back.  I wouldn't want anyone to suffer as I did with this disease.  If you do not belong to a Support Group, I strongly suggest you join us at: https://www.facebook.com/groups/1622748151282109/

Below is the DART logo you are looking for: