DART - Dupuytren's Advocates for Radiation Therapy is formed and I join in April 2014!
https://www.facebook.com/groups/1622748151282109/
This
group's sole focus is on Radiation Therapy for this disease. It has an
immediately influx of people. People who are interested in it AND
people who have had it!. I soak every single post and article written. I
contact people who have had this treatment. I even find someone in my
own town of Birmingham, AL that has been treated, AND they have been
treated locally at University of Alabama at Birmingham Hospital (UAB). I
start conversation with my family about this possible treatment. I
believe I have literally gotten them sick from hearing about the pain
that they are happy as ever there may be some treatment available.
I
connect with several people on this DART group and discuss their
situation. I call UAB and speak with Dr. Ruby Meredith's office
(Radiation Oncology dept at UAB). Dr Meredith treated a gentleman in
this group appx 5 years ago. His disease has stabilized and has had no
further growth. I am feeling reluctant and scared but I make the call
and find out she's treated Dupuytren's (the hand), but not Ledderhose
(the feet). BUT, she's willing to talk with me. She needs my medical
records to show the diagnosis.
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