Dupuytren's Disease, Dupuytren's Contracture and Ledderhose Disease, A RARE DISEASE recognized by NORD

NORD, National Organization for Rare Disease recognizes Dupuytren's and it's affiliated disease as a rare disease. http://rarediseases.org/rare-diseases/dupuytrens-contracture/ While Dupuyren's disease or Ledderhose disease does not always cause contracture, Dupuytren's Contracture is a term used for the hands when they do contract.  NORD has chosen February 28, 2017 as Rare Disease Day( http://rarediseases.org/for-patients-and-families/connect-others/rare-disease-day/ )and on this day we can each share our story on their website and on our personal sites to make others aware of this disease.  Please share your story, our disease is not as rare as you think!  We have millions of people in the USA with this disease and we still do not have anyone in an active stage of testing for a cure.  The Dupuytren Foundation is trying to find 10,000 people to sign up for the Dups Study, but in 6 months they have only found 700.  So, sharing your story will help us get to those millions.  If you have not registered, please do: The Dup's Study link is:  http://dupuytrens.org/enroll-in-the-iddb/

Follow me:  

Email:          DupuytrensDisease@mail.com 

Facebook:    Click here to join DART Facebook forum 

Website:      www.DupuytrensDiseaseSupport.com 

My Blog:     http://dupuytrensdiseasesupport.blogspot.com/ 

Twitter:       https://twitter.com/DupuytrensForum 

Twitter:       https://twitter.com/isellure

Dupuytren's Disease In The News

RUSSIA CONFERENCE May 2016
First international conference in Russia, dedicated to the problems of Dupuytren's contracture treatment and treatment of other diseases of the hand, such as stenosing ligamentitis (Trigger finger, De Quervain tendinitis), tunnel syndromes etc.

It is a shame these Surgeons do not even mention Radiation Therapy as a treatment option.  With no cure, it would be BEST to have non-invasive treatment if possible before any surgery since trauma tends to put Dupuytren's or Ledderhose into an active state.  ARGGGGG!
#dupuytrens #ledderhose #radiationtherapy #nosurgeryfordupuytrens #DARTonfacebook

Follow our website at:  www.dupuytrensdiseaseforum.com
Join DART on Facebook to learn more about treatment options  https://www.facebook.com/groups/1622748151282109/
Sign up for the Dupuytren's Study:   http://dupuytrens.org/enroll-in-the-iddb/
Follow us on Twitter:   https://twitter.com/DupuytrensForum
Follow me on Twitter:  https://twitter.com/isellure

Dupuytren's Disease in the NEWS, Do you ever see it?

I am attaching a link to the Dupuytren's Symposium that was last year. http://www.dupuytrensymposium.com/ 

Many people do not know there is work going on but there is just not one place to find it all.

FACEBOOK:   I hope you also join us at DART on Facebook.  Our link is:  https://www.facebook.com/groups/1622748151282109/

WEBSITE:  To find out more about Dupuytren's Disease or Ledderhose Disease follow my website at www.dupuytrensdiseasesupport.com 

ON TWITTER:  #dupuytrens #ledderhose  @isellure and @DupuytrensForum